Most people living with a PRRT2 mutation spend years — sometimes decades — searching for answers that didn't exist. We're building them: a dedicated knowledge base, a patient registry, and the research partnerships that put PRRT2 on the clinical map.
PRRT2 Foundation is the first organization built exclusively around this gene mutation — and everything we're building exists because someone finally had to start. Every PRRT2 patient has a story that looks the same: years of unexplained symptoms, wrong diagnoses, and doctors who'd never heard the name. We're building the resources that change that story. Your donation funds the knowledge base, patient registry, and research partnerships that every PRRT2 patient deserves — and that have never existed until now.
prrt2.org — the only dedicated scientific resource for PRRT2 patients and the clinicians trying to diagnose them.
The first registry for PRRT2 — connecting patients with the researchers who need to find them. No registry means no research priority.
Working directly with genetic labs and research institutions to advance PRRT2 testing, awareness, and clinical understanding.
We welcome gifts in any form. Reach out with any questions.
Make payable to PRRT2 Foundation, Inc. and contact us for our mailing address.
Contact us directly for wire transfer or ACH details.
We're working to make these giving options available. Get in touch if you'd like to give this way now.